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In the realm of caregiving, understanding how to support individuals with intellectual disabilities is not just a responsibility but a profound act of empathy and compassion. Every person, regardless of their abilities, deserves respect, dignity, and the right kind of assistance to lead a fulfilling life. In this comprehensive guide, we delve into the nuanced world of caregiving, offering practical insights and empathetic strategies for supporting individuals with intellectual disabilities. From fostering independence to creating inclusive environments, join us on this journey to discover the transformative power of compassionate care.
1. Be a good listener
Using empathy to understand the person you’re talking to is a good starting point. This means being aware of their emotions, needs, and concerns. It’s also about understanding that they have their own thoughts, dreams and passions.
People with intellectual disability can tempt to give an answer they think the listener wants (Reference Clare and GudjonssonClare). They may feign understanding by repeating a previous response or answering questions in an either/or format (‘Do you like sailing or reading?’).
They may not look at you when you speak and their body language might be different from yours. That doesn’t mean they are not listening – it just means their attention is on other things, such as running their fingers or shaking their legs. Using eye contact and an understanding nod is a good way of conveying that you’re listening. Keeping distractions to a minimum is helpful as well. A good listener will minimize noise, interruptions and internal distractions, such as preoccupied thought.
2. Be patient
People with intellectual disability can experience a range of challenges in their day-to-day lives. These may include communicating with others, expressing their needs and emotions, and performing daily tasks.
They can also have trouble understanding new information and following directions. They may take longer to complete activities or make decisions, and they might need extra help in school or at work.
The severity of a person’s intellectual disability can vary greatly, but early and ongoing treatment can improve their quality of life. It can help them learn skills and develop friendships, work and relationships.
It is important to understand that a person with an intellectual disability still has their own goals, dreams and passions. They should treat with compassion and respect. This will help them have a sense of self-worth and confidence. They also need to be able to protect themselves against harmful behaviour from people who might take advantage of them.
3. Be flexible
People with intellectual disability are often able to live independent lives, especially if they received the right support early in life. They may need a range of services such as education, vocational training, and housing options. They may also need specialised healthcare and support workers.
One thing you can do to help is to be flexible for them. For example, if they need to study in a specific room, try not to disturb them. Alternatively, let them know that they will be using that space for studying and that they shouldn’t play there at other times.
There are a number of medications that can use to treat conditions that cause or happen alongside intellectual disability. These do not cure intellectual disability but they can help with some of the symptoms.
4. Be understanding
People with intellectual disability, once known as mental retardation, have limitations that can affect their intelligence, learning and daily life skills. These conditions can be mild or severe and may require a lifetime of support.
Avoid making assumptions about their abilities. It can be patronizing and can make them feel depressed or angry. Instead, ask what they need help with and how much. For example, if they have trouble writing their name or answering simple questions, try using pictures or hand gestures. If they need a lot of help, it might be easier to take them to a doctor together with another person who can interpret and answer their questions for them (this is call a triadic consultation).
Find out what skills they’re learning at school and in community programs. You can also talk to other parents whose children have disabilities to get advice and support. Medications can treat some of the symptoms that may contribute to intellectual disability, but they cannot cure it.
5. Be positive
An intellectual disability is a condition that affects people’s intelligence and learning abilities. It can also make it difficult for them to live independently and cope with everyday life. It’s mainly caused by genetic disorders such as Down syndrome or Fragile X syndrome. It can also happen as a result of other conditions, such as mood disorders or problems during pregnancy, like lack of oxygen.
You may find that people with intellectual disabilities take longer to complete tasks or they might make mistakes. Try not to get frustrated or impatient with them because they can sense that and it lowers their self-esteem. If they need help, offer to do it for them – but don’t just do it for them.
Generally, people who have intellectual disabilities have a combination of physical and intellectual disabilities. This means they may have a physical disability, but they are at the population average for their age on an intellectual level.
6. Be kind
People with intellectual disability can live independently, although they may need help with daily tasks and living arrangements. They have dreams, goals and strengths that they can share with you.
They also have a right to treat with respect and dignity. Make sure you don’t patronize them or make assumptions about their abilities.
Intellectual disability (formerly known as mental retardation) is a condition that causes a person’s learning and mental abilities to be below the average for their age. It can cause by genetic conditions, such as Down syndrome or Fragile X syndrome; health problems like whooping cough, the measles or head trauma; extreme malnutrition or exposure to certain poisons, such as lead or mercury.
Sometimes signs of intellectual disability first noticed during a routine visit to the doctor, as part of an assessment of “ages and stages.” The good news is that there are programs available that work with infants and toddlers who have intellectual disabilities.
7. Be respectful
People with intellectual disability often have a strong sense of self and a desire to overcome problems. They may not be able to do so without help, but they will try their best. Respect their efforts, and don’t treat them as inferior.
If you are a teacher, try to communicate regularly with your student’s parents. Work with them (and other members of the team) to develop an Individualized Education Plan (IEP) that meets the student’s needs.
People with intellectual disabilities may not be able to protect themselves from people who take advantage of them. They may also be unable to recognize when others are trying to take advantage of them, so it’s important that you speak to the person first before approaching their caregiver. Doing this shows them that you consider them to be equals. This can prevent the person from feeling confused or upset. It also helps them form strong relationships with other people.
8. Be a good friend
Many people with intellectual disability have a supporter that helps them with daily activities and communication. It’s important to know this before addressing them directly so you can make sure your communication is clear and understood. Often this means speaking more plainly or using a visual aid. It’s also a good idea to speak slower and match your vocabulary to theirs.
It can be hurtful to treat like a child or to made fun of. People with intellectual disabilities can be sensitive to other people’s actions. They also have their own goals, interests and strengths. It’s important to remember that and show them you care about them.
A person with intellectual disability may have a higher risk of certain health problems, so it’s important to check for these. They also may have a harder time recognizing when someone is trying to take advantage of them. It’s important to be a friend that will help protect them when they need it.
9. Be positive
It is important to remember that people with intellectual disability have goals, dreams and strengths. They can live very happy lives if they supported by their families and their community.
A person with intellectual disability has limitations in their intelligence and adaptive behaviour capabilities. These can cause difficulties in learning and everyday life skills. This type of impairment can range from mild to severe.
People with intellectual disability often have other conditions as well, such as physical disabilities or autism spectrum disorders. They may also experience depression and anxiety.
When meeting someone with an intellectual disability, it is a good idea to follow culturally appropriate approaches for greetings and introductions. This is generally respectful and focuses on listening to the person’s concerns, as well as their personal history and family background. It’s also helpful to identify options for crisis or respite services in the person’s community. These can help to avoid unnecessary hospital admissions and reduce the likelihood of repeated crises or re-admissions.
Conclusion
In conclusion, supporting individuals with intellectual disabilities is not just about providing assistance; it’s about fostering a sense of belonging, dignity, and empowerment. Through our shared journey, we have explored the essential strategies and empathetic approaches that can truly make a difference in the lives of those with intellectual disabilities. Remember, each small act of understanding and support has the potential to create a significant impact.
At Humanity Care Australia, we are committed to championing this cause, believing in the power of compassion and respect. Our organization stands as a beacon of support, dedicated to providing tailored care, fostering independence, and nurturing inclusive communities. Together, we can continue to make strides towards a world where every individual, regardless of their abilities, is embraced and supported. Let us join hands in creating a more empathetic and understanding society, where everyone has the opportunity to flourish.